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ea0019oc8 | Young Endocrinologist prize session | SFEBES2009

Quality of life (QoL) in male and female patients with congenital adrenal hyperplasia (CAH) compared to healthy subjects and patients with primary adrenal insufficiency

Bleicken B , Hahner S , Loeffler M , Ventz M , Allolio B , Quinkler M

Objective: There is evidence that current replacement regimens fail to restore well-being in patients with primary adrenal insufficiency (PAI). Few data is available on QoL in adult male and female patients with CAH.Methods: Patients with CAH or PAI were contacted and received a disease specific questionnaire and three standardized questionnaires (SF-36, GBB-24 and HADS). Reference data for SF-36 scores were obtained from the German National Health Surve...

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ea0011p182 | Clinical practise and governance | ECE2006

Impaired quality of life in patients with adrenal insufficiency – evidence that improved glucocorticoid replacement strategies are needed

Hahner S , Loeffler M , Arlt W , Decker O , Koschker AC , Weismann D , Fassnacht M , Allolio B

A recent study has reported impaired subjective health status (SHS) in 79 patients with primary adrenal insufficiency (AI) despite routine steroid replacement1. Here we have performed a survey in a large cohort of patients with primary and secondary AI. 348 patients (148 outpatients and 200 registered participants of the self-help network for adrenal and pituitary diseases) were contacted by mail. 256 (74%) agreed to participate and received a disease specific and 3...

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Endocrine Abstracts

Quality of life (QoL) in male and female patients with congenital adrenal hyperplasia (CAH) compared to healthy subjects and patients with primary adrenal insufficiency

Impaired quality of life in patients with adrenal insufficiency – evidence that improved glucocorticoid replacement strategies are needed

BiosciAbstracts